QuestionI basically am just trying to make myself feel better. I had a lap procedure in April and found out I had massive endo on the back of my uterus and my bladder. They weren't able to take care of anything during that lap b/c it was too massive and would become too invasive. They told me that I would only feel bad for a couple of days after my lap, so expected to be fine going back to work on Monday (my procedure was on Thursday). Well, I ended up feeling horrible for a couple of weeks and just working through it. I went right in to Lupron Depot treatments, having my first shot in May. I then had a shot in June and July. My first 3 month dosage was in August and my second one was in October. I have felt horrible ever since I started my shots. I am a fun, outgoing, happy 26 year old woman, that has turned in to someone completely different. I am ALWAYS tired, even though I try to get at least 8-9 hours of sleep a night. If I get any less than that, I can hardly function. My eyes are always burning. I am constantly emotional. Tears come at the drop of a hat. Since my last shot, I have had nonstop spotting and frequent cramps, also some vomiting at random times. I'm just not myself anymore. I don't like this person that I have become. I'm even too tired to do things, but go about my days at work and trying to do stuff with my fiance and our family's. My poor fiance, just the thought of sex or being touched makes me want to cringe. I have absolutely no desire whatsoever, and we used to have a wonderful, healthy sex life. Thankfully he's so understanding, but I'm so frusterated and feel so guilty. I am scheduled for my 2nd lap procedure January 30th. I have decided that I think I need to take a few weeks to allow my body to recover and heal itself. I don't want to take any chances of over doing it and my body not getting back to normal. But the problem is, the lady that I talked to about this at my Dr's office acted like I was stupid for wanting to take the few weeks off. Maybe I'm just oversensitive right now, but I think I know my body and I know that if I don't take this time after almost a year of going through all of this, that it won't recover the way that I want it to. Basically I just need reassured that taking these few weeks off isn't a stupid decision and that I should just ignore the lady at the front desk that scheduled my surgery. Please tell me this is all going to get better! =/ Thanks!
AnswerHi Sarah
I am sorry you are going thru so much with this endo thing. The one huge misconception about endo...(especially when you don't have it), is how devastating it can be. People in general don't understand the constant pain, discomfort, fatigue and generally overall horrible way you feel. I can totally relate to the change in your activity.
Taking time off, in my opinion, is totally wonderful if you can do it! Go for it. Not only are the symptoms of endo and the treatment women have to endure stressful, your daily life is debilitating.
I am not a fan of Lupron, while I could, I chose to get on BC pills to help my estrogen. If your gyno approves, I'd get off the Lupron and try the BC...
I hope you find relief and enjoy your time off. Your should not feel weird about taking the time either...let someone else walk a mile in your shoes and see how they react. I have found that women with endo, overall, have more stamina than men...we have to.
Good luck and I sure hope you feel better soon!
Martha
