QuestionMs. Russell,
Like you, I have had severe unexplained pelvic pain since I was 11 yrs. old. I am now 27. I have had 3 laporoscopic surgeries, and still no one can tell me what's wrong. I have never been pregnant in my life. My husband and I have been trying to have a baby for the past 5 yrs. With no luck...I saw an infertility specialist back in May, and the last thing he told me was that he thought I had endo after performing an HSG. Due to no insurance available at the time, I never went back to him. Now my gyn wants to schedule another laporoscopy....my question is though I have yet to be formally diagnosed with endo, I seem to have 95% of the symptoms, what should I do? Please, any advice would be greatly apreciated.
Thank you,
Lucy H.
Dallas, TX
AnswerDEAR LUCY,
WOW, YOU'VE REALLY BEEN THRU THE WRINGER WITH THIS STUFF! THE LAPOROSCOPY (ALL OF THEM) SHOULD HAVE DEFINED EXACTLY WHAT YOU HAVE...AND ESPECIALLY IF IT IS ENDO. THAT IS USUALLY THE FAIL SAFE WAY TO DIAGNOSE ENDO...I WOULD TRY TO STICK TO A SPECIALIST TO GET AN ACCURATE DIAGNOSIS. AND YES, IT SOUNDS LIKE YOU HAVE ENDO.COUPLES TRYING TO HAVE A BABY ( WITH THE WIFE HAVING ENDO) CAN CERTAINLY CONCEIVE, BUT IT MAY TAKE LONGER...ENDO SORT OF BLOCKS THE WAY FOR THIS...SCAR TISSUE AND GENERAL "BLOCKING OF THE PLUMBING", SO TO SPEAK, CAN DETER BECOMING PREGNANT QUICKLY...BUT DON'T WORRY, IT WILL HAPPEN!!!
IF YOU CAN'T LOCATE A GOOD GYNO, TRY THE ERC-ENDO RESEARCH CENTER WEBSITE, THIS SITE IS VERY HELPFUL AND CAN GIVE YOU NAMES OF DOCTORS NEAR YOU. I BELIEVE YOU CAN ALSO CALL THEM WITH SIMIILAR QUESTIONS.
I REALLY FEEL FOR YOU, BECAUSE I KNOW HOW HORRIBLE IT FEELS WITH ENDO AND WORSE...YOU DON'T EVEN HAVE A DEFINED DIAGNOSIS...IF YOU DO GO TO NEXT APPT AND HAVE THE LAP, ASK YOUR DOCTOR WHY A DEFINITE DIAGNOSIS CAN'T BE MADE FROM THIS PROCEDURE? OTHERWISE, I'D HOLD OUT FOR A SPECIALIST OR AT LEAST A "HIGH RISK" DOCTOR. MY GYNO IS ONE OF THESE AND SPECIALIZES IN ENDO AND FERTILITY...THAT WOULD BE WHAT YOU WOULD NEED...
I DON'T KNOW IF I'VE HELPED YOU AT ALL, AND I WISH YOU THE BEST OF LUCK! STICK TO YOUR GUNS ABOUT THAT PROCEDURE. YOUR PAST RECORDS MIGHT JUST HOLD THE ANSWER. THANKS FOR WRITING. MARTHA
